SUPPORT GROUPS

Centrul NoRo

will host groups of patients with the same rare diagnosis or groups from the same cluster of rare diseases (where the number of patients is very small) who will benefit from online support groups and training in disease management.
NoRo Center organizes monthly, since 2010, groups of patients affected by certain rare diseases, who benefit from training in disease management, therapy and support group.
The program includes training modules in the management of rare diseases (addressing medical, psychological and social issues) and individual or group therapeutic activities.
Given the diversity and complexity of rare diseases, NoRo Center provides online therapeutic education and counseling activities: psychological and social counseling, online medical consultations, training on disease management, nutrition, weight management and so on.
Depending on the diagnosis and the needs identified by the team of specialists, patients receive recommendations for therapies. Through this form of approach we aim for patients to learn how to cope with the disease, to learn new information about their disease, to share experiences and to acquire new skills with the help of therapists, which to apply in daily life. For specialists, these groups are important because they have the opportunity to meet patients with the same diagnosis but with extremely different needs. 

August 31 - September 4, 2020, the first online therapeutic education group for patients with Achondroplasia

The challenges for patients affected by Achondroplasia and their families are continuous and we come to their support through the platform www.centrulnoro.ro, through which patients and their parents meet virtually. For a week, doctors, therapists, psychologists and social workers will help them cope with the challenges of the disease, helping them to continue their therapy at home.
Patients will find answers about the general aspects of the disease, the rights and obligations of people with disabilities, developing treatments, etc. They will have the opportunity to meet other parents and patients who face the same problems and will be able to share their experience in the fight against the disease.

Istoric

SUPPORT GROUPS

29.06-02.07
2020

The first group of patients for online therapeutic education

In the week of June 29-July 3, 2020, we organized the first online group of patients with Myasthenia Gravis.

27.07-31.07
2020

Online group - Prader Willi Syndrome

The Romanian Prader Willi Association organized during July 27-July 31, 2020 the first online therapeutic education group for patients with Prader Willi Syndrome.

31.08-04.09
2020

The first online therapeutic education group for patients with achondroplasia

The challenges for patients affected by Achondroplasia and their families are continuous and we come to their support through the platform www.centrulnoro.ro, through which patients and their parents meet virtually.

Contact

0260.610.033 sau 0735.858.667
Zalău, Str. 22 Decembrie 1989, Nr. 9
office@centrulnoro.ro

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